Equipment and adaptations
Grants towards wheelchairs, adapted vehicles, specialist seating, communication aids and the everyday equipment the NHS cannot fund.
How we help
Practical help, emotional support and time together
We support people living with spinal muscular atrophy and their families however we can, in line with our charitable objects. Some help is a grant for equipment. Sometimes it is simply someone who understands on the other end of the phone.
Emotional support
A listening ear for parents, guardians and relatives, and help finding the right support at the right moment.
Time together
Short holidays and memory making for families facing a short prognosis, so they can be together away from appointments.
Research and community
Donations towards research into SMA and work with like minded charities across the SMA community.
Your help in action
Grants we have made
These are real families we have been able to help, in their own words.
“The Annabelle Rose Foundation provides families like ours with much needed equipment that the NHS does not help you with, equipment that truly makes a difference.”
Lynsey, Luca and Lana’s mummy
A grant towards a wheelchair adapted vehicle (WAV), a portable power kit for critical equipment, and a specialist chair and beanbag for Lana.
Luca and Lana
“Not only do the Annabelle Rose Foundation continue to offer us amazing emotional support, they have also given us an incredible donation. I am truly and forever grateful.”
Lucy, George’s mummy
A £5,000 grant towards George’s own Snapdragon custom built wheelchair from Dragon Mobility.
George
“I have nothing but good things to say about The Annabelle Rose Foundation. The help and support they have provided has been invaluable.”
Emma, Daisy’s mummy
An iPad to entertain and support Daisy’s learning during long hospital stays, plus help for the family to be at her side.
Daisy
“As well as helping his game, it has also helped his street cred and confidence.”
Sue, Sam’s mum
Boccia equipment for Sam. Boccia is a Paralympic sport for athletes with severe disabilities affecting motor skills.
Sam
“This has changed my life.”
Jo
A wheelchair for Jo, who has type 3 SMA, and a powerchair football chair and bumper for Cath so she can keep playing wheelchair football.
Cath and Jo
“We are humbled and will never forget what you have done for us as a family.”
Hayley, Maisy’s mummy
A £5,000 grant towards Maisy’s own Snapdragon custom built wheelchair from Dragon Mobility.
Maisy
Applying
How to ask for help
- 1
Get in touch
Email us with a little about your family, what would help most, and the best way to reach you.
- 2
Talk it through
We will have a conversation about what is possible. If you are working with a hospital team, health visitor or social worker, you are welcome to include them.
- 3
We make a grant
Where we can help, we agree the grant directly with you and the supplier or service, keeping everything simple and confidential.
We work alongside like minded charities and local businesses. Meet our friends.
Everything you share is treated in confidence. Email hello@annabellerosefoundation.co.uk to start the conversation.