Latest news
We add to this page whenever there is something worth sharing.
What we share
Family stories
Families tell us what support has meant, in their own words.
Research and care
Clear updates on SMA treatments, screening and hospital care.
Fundraising
Events, challenges and the people who make them happen.
Foundation news
Grants, partnerships and the behind-the-scenes work that keeps us going.
Share your news
Have a story or a fundraising update?
If you are a family we support and would like to share your experience, or you have a fundraising event coming up, we would love to hear from you. We can help with wording, photos and the practical details. Nothing goes on this page without your permission.
Get in touch
hello@annabellerosefoundation.co.ukWe read every message and will reply as soon as we can. If you need urgent medical help, contact your GP, NHS 111 or 999.